Toronto and District Multiple Myeloma Support Group
Who We Are
The Toronto & District Multiple Myeloma Support Group is comprised of myeloma patients, their caregivers, families, and friends. It grew out of a need for information and support in dealing with this rare cancer.
Our group welcomes patients and their spouses, caregivers, loved ones, significant others, family members and friends to join us as we share support, comfort, information and friendship in a relaxed, informal and confidential environment.
What We Do
The main purpose of the Group is to offer myeloma patients and their loved ones the support and information needed to help them live longer, stronger lives.
The Group offers four main services:
Every second month we have a meeting that often has a guest speaker knowledgeable in myeloma, in associated health conditions, or issues affecting myeloma patients. These meetings inform us about the advances in treatments, emerging therapies, managing side effects, and other aspects of living with myeloma. Click on the "Meetings" tab for information on our upcoming meetings. While these meetings are largely informational in nature, there are opportunities to talk informally with other myeloma patients and their families, and share experiences. We produce a video of the presentation made at most meetings, for the benefit of the Canadian myeloma community. Videos of past meetings are found on the Myeloma Canada website, at: https://www.youtube.com/user/myelomacanada/videos.
A newsletter that is published every second month which provides information on meetings, usually a transcript of the last meeting, a description of developments in the myeloma community, and a description of myeloma related events in the Toronto area.
Please contact anyone listed under “Contacts” if you wish to be added to the newsletter distribution list, or receive a copy of our latest newsletter.
3) Opportunity to speak with other patients and caregivers
Some patients benefit from speaking one-on-one with another myeloma patient who has navigated the myeloma journey for some time and is willing to share their experience. Click on the “Contacts and Links” tab for a listing of patients or caregivers who would be pleased to speak with you, answer questions, and help you source additional information.
We offer printed information material at our meetings. We also work closely with Myeloma Canada (www.myeloma.ca). Their website contains a wealth of information. It also contains the Myeloma Patient Handbook, an excellent overview of the disease and treatments, linked here: http://www.myelomacanada.ca/docs/ph_en_2014_lr.pdf .
The “Contacts and Links” page contains information on other valuable sources of information and support.
Multiple myeloma (often shortened to “myeloma”) is a blood cancer of the plasma cells in the bone marrow. The plasma cells proliferate to the point where they can damage bones, and other organs in the body. Great progress has been made in recent years in the treatments for myeloma. Myeloma is still not curable, but it is increasingly treatable.
New advances in treatment have given patients much hope, and have permitted most myeloma patients to live much longer and better lives.